When I started this blog I had high hopes of adding posts every 2 weeks. Accomplishing that is harder than I thought, especially during this time of year. Plus, going back and reliving this particular journey is difficult and I have been putting it off. I have decided that I need to get it done…
The Crohn’s Disease Journey Part 1
In 2017, TJ started high school at a very big public school near us here in Glendale, AZ. His behavior wasn’t concerning. I thought it was normal 14 year old boy stuff. The first semester was fine. By February of the second semester, he was a different kid. He was withdrawn, didn’t want to go…
The ALS Journey – Part 2
Changes After 5 months of seeing a physician that was knowledgeable, but not helpful, we decided to get a second opinion at the Barrow Neurological Institute‘s ALS and Neuromuscular Disease Center . The process of getting an appointment was easy, although it took some time to get in. But, the wait was worth it. In…
The ALS Journey – Part 1
How it began In the fall of 2019 my husband Jon, was driving his new dream truck to a full-time desk job and was an avid runner, hiker, and fisherman. He took care of the yard work, and pool cleaning, and helped with many things inside the house. I was working part-time at our daughter’s…